|
ABC
for Health Links Page
This
page contains links to many websites that provide services and information
to both the consumer and the advocate. All of the links gathered below
are checked for accuracy and will open in a new window. If you have any
suggestions for the links page, such as a new site to be added, or to
change information on a current link, please let us know, by emailing
the webmaster.
- Federal
- federal
government websites and information resources
- State
- state of Wisconsin websites and information
resources
- Advocacy
(National) - organizations that advocate on health care issues at a
national level
- Advocacy
(State) - organizations
that are concerned with health care issues in Wisconsin
- CSHCN
- websites concerning the families of Children with Special Health Care
Needs
- Medical
- sites containing frequently sought information
about medical condition
- Legal
- health law information for everyone, including
pro bono resources
- Health
News - press pages of federal and state agencies
as well as media sites
- Research
- sites with cutting edge health care and health
policy research
- Miscellaneous
- a collection of sites that just don't
fit anywhere else
United States Government Printing Office
| |
http://www.access.gpo.gov |
| |
The
website of the US Government Printing Office contains info about gaining
access to government information products,
including the code of federal regulations,
and the federal register.
The site also features a search
engine. |
US Department of Health and Human Services
| |
http://www.hhs.gov |
| |
The
Department of Health and Human Services is the United States government's
principal agency for protecting the health of American citizens and
providing essential human services. It oversees a broad range of agencies;
agency structure is detailed on its organizational
chart. The site contains a broad range of information resources,
including factsheets
and news releases. |
Health
Care Financing Administration
Administration
for Children and Families
| |
http://www.acf.dhhs.gov/ |
| |
The
Administration for Children and Families within the Department of
Health and Human Services is responsible for federal programs that
promote the economic and social well-being of families and children.
Their site contains information on Head
Start, child
care, and child
welfare programs, as well as programs dealing with developmental
disabilities and tribal
health. |
National
Council on Disability
| |
http://www.ncd.gov/ |
| |
The
National Council on Disability is an independent federal agency making
recommendations to the President and Congress on disability policy
and representing all people with disabilities, regardless of severity,
age or cultural background. While they are a policy agency, rather
than an advocacy agency, their site contains an excellent resources
page, and regularly publishes detailed reports
and recommendations. |
Office
of Minority Health
| |
http://www.omhrc.gov/ |
| |
The
Office of Minority Health's mission is to improve the health of racial
and ethnic populations through the development of effective health
policies and programs that help to eliminate disparities in health.
Their site contains information on OMC
programs and initiatives,
as well as statistics
on minority health and a variety of detailed publications. |
Substance
Abuse and Mental Health Services Administration
| |
http://www.samhsa.gov/ |
| |
The
Substance Abuse and Mental Health Services Administration is the Federal
agency charged with improving the quality and availability of prevention,
treatment, and rehabilitative services for those dealing with substance
abuse and mental illness. The site contains information about their
Medicaid mental health
managed care initiative as well as legislative
alerts. |
Office
of the Surgeon General
| |
http://www.surgeongeneral.gov/sgoffice.htm |
| |
Contains
reports from the Surgeon General's office and information on the Office's
projects. |
US
Legislative Information on the Internet
| |
http://thomas.loc.gov/ |
| |
A
detailed and comprehensive information resource which allows you to
track legislation and legislative action. |
Citizen's
Health Care Working Group
| |
http://www.citizenshealthcare.gov/ |
| |
A
Group created by Congress and the president to help design a health
care system that works for all Americans by asking them four key questions.
Answer the poll and view the Working Group's recommendations. |
Wisconsin Department of Health and Family Services
Wisconsin
Legislature
| |
http://www.legis.state.wi.us/ |
| |
The website of the Wisconsin
Legislature has information on Assembly
and Senate
committees and allows you to find the text of pending
legislation, as well as track legislation
including bills awaiting action by the Governor.
It also has a easy-to-use index that allows you to find your legislators
easily. |
Office
of the Commissioner of Insurance
| |
http://oci.wi.gov/ |
| |
This
site features information for consumers
about HMOs,
and includes a directory of licensed
insurers. Also available is the full range of OCI publications
which are useful for consumer and advocate alike. |
"Badger",
The Website of the State of Wisconsin
| |
http://badger.state.wi.us/ |
| |
The state website
is a gateway to the sites of most state
agencies. The site features an on-line telephone and e-mail directory
of state employees,
as well as links the webpages of local governments statewide.
|
ACCESS
Website
| |
http://www.access.wi.gov/ |
| |
ACCESS is a
quick and easy way for people in Wisconsin to get answers to questions
about health and nutrition programs. Find out if you might be eligible
for benefits, check on the benefits you are receiving or have applied
for, or even apply for benefits online. |
Wisconsin
Primary Health Care Association (WPHCA)
| |
http://www.wphca.org/index2.htm/ |
| |
The mission
of the WPHCA is to advance geographic, financial, and cultural access
to comprehensive, community-oriented primary health care services
for all people in Wisconsin. The WPHCA website contains contact information
for all of the community and migrant health clinics in Wisconsin. |
The
Robert Wood Johnson Foundation
| |
http://www.rwjf.org/index.jsp |
| |
The
Robert Wood Johnson Foundation was established as a national philanthropy
in 1972 and today is the largest US foundation devoted to improving
health and health care quality. The foundation is the granting agency
of the Covering
Kids Wisconsin Project. |
The
Henry J. Kaiser Family Foundation
| |
http://www.kff.org |
| |
The
Henry J. Kaiser Family Foundation is a philanthropy focusing on the
major health care issues facing the nation. The Foundation serves
as an independent voice and source of facts and analysis for policymakers,
the media, the health care community, and the general public. Among
their projects are analyses of Medicaid
and the uninsured, minority
health, and the health
care marketplace. One
useful tool is their state
health facts page, which includes both aggregate information on
the US
and information on Wisconsin.
|
Kaiser
Network
The
Children's Defense Fund
National
Assembly of School Based Health Care
| |
http://www.nasbhc.org/ |
| |
The
National Assembly makes available information and expertise regarding
the administration of school-based health services to interested persons
through training and education projects. |
The
Annie E. Casey Foundation
| |
http://www.aecf.org/ |
| |
The
Annie E. Casey Foundation provides grants to public and nonprofit
organizations to strengthen the support services, social networks,
physical infrastructure, employment, self-determination, and economic
vitality of distressed communities with the intention of meeting the
needs of disadvantaged children. They are best known for their Kids
Count project which is a national and state-by-state effort to
track the status of American children. Their site contains downloadable
versions of several reports
and publications including their interactive online Kids
Count Data Book which has comprehensive data on national indicators
of child well being. |
National
Association of Child Advocates
| |
http://www.childadvocacy.org/ |
| |
The
National Association of Child Advocates is a lobbying and advocacy
organization that nationally coordinates advocacy activities at the
state, county and city level. It's site contains links to state
and local organizations, including some is Wisconsin. |
National
Center for Farmworker Health
| |
http://www.ncfh.org/ |
| |
The
National Center for Farmworker Health, Inc. is a private, not-for-profit
corporation established in 1975 to develop a computerized medical
record transfer system for migrant farmworkers. Their site contains
description of the center's projects,
and a useful resource page. |
The
Children's Partnership
| |
http://www.childrenspartnership.org/ |
| |
The
Children's Partnership is a national nonprofit, nonpartisan organization
that undertakes research and policy analysis and publishes reports
and multimedia materials with the intent of informing policymakers,
parents and advocates about trends affecting America's children. |
The
Waisman Center
| |
http://www.waisman.wisc.edu/index.html |
| |
The Waisman Center at
the University of Wisconsin-Madison is one of 14 national centers
dedicated to the advancement of knowledge about human development
and developmental disabilities through research and practice. They
are housed in an eight-story, 120,000 square-foot building, with 42
research laboratories, 7 clinics, 3 biological (clinical) laboratories,
and a preschool. Their site has a substantial archive of publications,
descriptions of their current
projects, and parent
resources. |
Wisconsin
Council on Children and Families
| |
http://www.wccf.org/ |
| |
The Wisconsin Council
on Children and Families is a nonprofit, multi-issue child and family
advocacy agency headquartered in Madison and Milwaukee. The council
promotes the well-being of children and families in Wisconsin by advocating
for effective and efficient health, education, and human service delivery
systems. Their site contains details about their W-2
Watch project, their Wisconsin
Budget Project, and their Great
Beginnings (early childhood brain development) project, as well
as links to their publications.
|
Wisconsin
Primary Health Care Association
| |
http://www.execpc.com/~wphca/ |
| |
The Wisconsin Primary
Heath Care Association's mission is to promote access to comprehensive,
community-oriented primary health care services for medically underserved
communities in Wisconsin. It is a private nonprofit association of
community and migrant health centers, rural health clinics, and other
organizations concerned about access to health care for underserved
rural and urban populations. Their site features descriptions of their
activities, information about federally qualified health centers in
Wisconsin, and contact information. |
The
Economic Justice Center
| |
http://www.law.wisc.edu/eji |
| |
The Economic Justice Center
advocates for consumers and low-income families through education,
research, training, and representation. Their site features numerous
public policy and research topics on a variety of issues. |
Families
MAP Project
| |
The Families MAP project
is dedicated to creating a managed advocacy program to complement
the proliferation of managed care structures in Wisconsin. The main
page contains a description of the project, a copy of the project
abstract
and links to the pilot projects in Dane,
Milwaukee,
and Chippewa
counties. |
Technical
Assistance Alliance for Parent Centers
| |
The Technical Assistance
Alliance for Parent Centers is funded by the US Department of Education
to serve as the coordinating office for the Technical Assistance to
Parent Projects. The Alliance focuses on providing technical assistance
for establishing, developing, and coordinating Parent Training and
Information Projects under the Individuals with Disabilities Education
Act. Their site features a comprehensive database
of resources for parents of children of special health care needs,
as well as links to parent
centers across the country and an index of upcoming legislative
issues. |
IDEA
Practices
Special
Child
| |
Special Child is an online
publication dedicated to parents of children with special needs. The
publication is clearly organized, with success
and horror stories
of parents of children with special health care needs. The publication
also features a comprehensive but lay-person accessible legal
issues page and a nifty bulletin
board. |
Family
Voices
| |
Family Voices is a national,
grassroots clearinghouse for information and education concerning
the health care of children with special health needs. They monitor
public and private sector health care changes that affect children
and families through the collective efforts of member families. Their
site contains descriptions of their current
projects as well as archived publications,
a search engine,
and a good resources
page. |
Parenting
Children with Special Needs
| |
Part of the About.com
network, this page contains a broad range of feature articles on parenting
as well as disorder specific information regarding children with special
health care needs. |
Internet Resources
for Special Children
| |
The IRSC is a nonprofit
web site which provides parents, educators, medical professionals,
and caregivers with information regarding children with disabilities
with the aim of increasing these children's quality of life and public
awareness of the issues surrounding them. The site serves primarily
as a web-portal, with a good links
page archived by disorder, which is often updated. |
National
Alliance for the Mentally Ill Youth Medicaid and Mental Illness
| |
This sub-page of the website
of the National Alliance for the Mentally Ill contains facts about
Medicaid and children with mental health care needs. |
The ARC of the
United States
| |
The Arc is a national
organization of and for people with mental retardation and related
developmental disabilities and their families. They represent over
seven million children and adults with mental retardation and their
families. Their site features a comprehensive factsheet
list as well as a publication and video archive
and descriptions of their public
policy initiatives. |
Autism Society
of Wisconsin
| |
The Autism Society of
Wisconsin provides support and information to the autism community
in Wisconsin through an annual conference, a free quarterly newsletter,
and a Wisconsin directory of people offering information and assistance.
They provide a consumer guide to in-home
therapy providers, and information on legal
rulings concerning autism as well as links to local groups. |
Special
Needs Network for Military Families
| |
The Department of Defense
Special Needs Network provides a variety of information and listings
for military families of children with special health care needs.
The site features a confidential members
network through which families and service providers can exchange
information. The site works in collaboration with the Exceptional
Family Member Program, which is offered in each service branch,
has a membership of over 100,000 service men and women, and provides
referrals for families with special needs. |
National
Policy Center for Children With Special Health Care Needs
| |
The National Policy Center
for Children With Special Health Care Needs was established through
a cooperative agreement with the Maternal and Child Health Bureau,
HRSA, and DHHS. It promotes comprehensive, family-centered systems
of care for children with special health care needs and their families.
The Center is committed to producing information that is relevant
to benefit managed care organizations, state agencies, families and
program administrators. They are research oriented, and their site
has descriptions of their projects and products,
as well as a list of publications
available. |
Waisman
Early Intervention Program Parent Projects
| |
Waisman Early Intervention
Program Parent Projects provide leadership training and support to
parents of children with special health care needs so that they may
more effectively obtain services they need and have a positive impact
on the service delivery systems in Wisconsin through advocacy, participation
on advisory committees and direct program participation. |
National Information
Center for Children and Youth with Disabilities
| |
NICHCY is the national
information and referral center that provides information on child
disabilities and disability-related issues for families, educators,
and other professionals. They have dual sites in English
and Spanish, as well
as publications in English
and Spanish.
In addition their site features factsheets
and a news digest. |
The Consortium
for Citizens with Disabilities
| |
The Consortium for Citizens
with Disabilities is a coalition of 100 national disability organizations
advocating for national public policy that ensures the self determination,
independence, empowerment, integration and inclusion of children and
adults with disabilities. Their site features a legislative issues
index. In
addition they have commissioned several issue task forces that focus
on child care,
developmental
disabilities, health,
welfare policy,
and other issues. |
Managed
Care for Children with Special Health Care Needs
DHFS
Facts for Families
| |
The Program for Children
with Special Health Care Needs (CSHCN), in the Wisconsin Division
of Health webpage is designed to help families evaluate whether they
are eligible for programs and services that assist children with special
health care needs. |
Parent
Education Project of Wisconsin
| |
The Parent Education Project
of Wisconsin is an independent, not-for-profit agency serving families
across Wisconsin. They focus on special education, disability rights,
and improving public education for children and youth with disabilities.
|
The
Family Village
| |
The website of the Family
Village attempts to integrate information, resources, and communication
opportunities on the Internet for persons with cognitive disabilities,
their families, and those that provide them services and support.
The site features a "coffee
shop" for networking, a bookstore,
a "shopping
mall" for assistive technology, and other resources. |
Center for Health
Care Strategies
Parent
Advocacy Coalition for Education Richts (PACER)
| |
A national center based
in Minnesota whose mission is to expand opportunities and enhance
the quality of life for children and young adults with disabilities
and their families, based on the concept of parents helping parents. |
Wisconsin
Coalition for Advocacy (WCA)
| |
The mission of the WCA
is that all persons with disabilities and their families shall be
empowered to exercise and enjoy the full extent of their rights and
to pursue the greatest possible quality of life. |
Parent
to Parent of Wisconsin
| |
This program helps with
the multitude of issues that parents face every day by matching them
up with other parents with similar experiences. They do not have a
website at this time but click
here for their brochure. |
Med-Help International
Health
Finder
| |
Health Finder is a gateway
to consumer health and human services information developed by the
US Department of Health and Human Services. Their site features many
useful tools including factsheets
indexed by disorder, links to government health news and online health
media, online
journals, medical dictionaries and other databases,
as well as consumer
information. |
Federal Statutes
and Regulations
Wisconsin State
Statutes and Regulations
Bazelon Center
for Mental Health Law
| |
The Bazelon Center for
Mental Health Law is a nonprofit legal advocacy organization based
in Washington D.C. who advocate for people with mental disabilities.
Their site contains information on the American's
with Disabilities Act and mental health issues, advocacy resources
for children with mental
disabilities, and a powerful search engine. |
National
Health Law Program
| |
The National Health Law
Program (NHeLP) is a national public interest law firm that seeks
to improve health care for the working and unemployed poor, minorities,
the elderly and people with disabilities. NHeLP serves legal services
programs, community-based organizations, the private bar, care providers,
and individuals who work to preserve a health care safety net for
the millions of uninsured or underinsured low-income people. Their
site has a comprehensive set of information resources, including a
health news wire,
links to the federal
register a searchable publications
index featuring reports, manuals, and reference documents, as
well as resources on immigrant
health, child
health, and Medicaid. |
Center
for Family Policy and Practice
| |
The Center
for Family Policy and Practice provides information and technical
assistance for issures with child custody and support. |
The
State Bar of Wisconsin's 'Legal Explorer' Link
| |
The State Bar of Wisconsin's
'Legal Explorer' Link provides legal information for consumers. |
Health
Law Media Page
| |
The media page of the
national health law program has daily updates of health news stories
from across the country. |
Kaiser
Network
Health
and Human Services Public Information
Social
Security Administration Press Office
Substance
Abuse and Mental Health Services Administration
| |
The news page of the Substance
Abuse and Mental Health Services Administration features links to
their news release
page, as well as weekly activity reports. |
The
Urban Institute
| |
The Urban Institute is
a nonprofit policy research whose goals are to improve government
decisions and their implementation, and increase citizens' awareness
about important public choices. Their site is an excellent research
tool and can be searched
by topic, keyword, author, and time of publication. The UI primarily
performs research on the impact of federalism
on social welfare,
as well as detailed policy
briefs and economic
analysis. |
Center
on Budget and Policy Priorities
| |
The Center on Budget and
Policy Priorities specializes in research and analysis oriented toward
policy at both federal and state levels. The Center examines data
and research findings and produces analyses designed to be accessible
to public officials, other nonprofit organizations, and the media.
They report extensively on health
issues and welfare
policy as well as a host
of other issues. |
Maternal
and Child Health Policy Research Center
| |
The Maternal
& Child Health Policy Research Center is a health policy group that
focuses on the financing, delivery, and quality of health services
to children. Their site details their current
projects, and a comprehensive publications
database. |
Institute
for Child Health Policy
| |
The Institute for Child
Health Policy is headquartered at the University of Florida focuses
on issues of health care access, utilization, cost and quality, with
a special emphasis on children with special health care needs. They
research, evaluate, formulate, and advance health policies, programs,
and systems that promote the health and well-being of children and
youth. While they report on a variety of issues, much of their research
focuses on children in managed
care. |
Health
Affairs
| |
Published
by Project HOPE, Health
Affairs is one of the nation's leading journals of health policy.
They report on a broad range of health issues, and their site holds
both the current
issue and archive
copies of back issues. |
State
Coverage Initiatives
| |
State Coverage Initiatives
is a Robert Wood Johnson Foundation-sponsored
program aimed at improving the practical capabilities of state governments
to plan, execute, and sustain health care coverage expansions to the
previously uninsured. Their site features issue briefs and case
studies, including a brief on BadgerCare,
a nice glossary
of coverage related terms, and a comprehensive links
page. |
The
Commonwealth Fund
| |
The Commonwealth Fund
is a private nonpartisan foundation that supports independent research
on health and social issues and makes grants to improve health care
practice and policy. The Fund’s two national program
areas involve health insurance coverage and access to care and
improving the quality of health care services. Their site has publications
on child
health, Medicaid,
the uninsured,
and quality of care for underserved
populations, among other topics. |
Rand
Health
| |
Rand Health is a research
division within the Rand Corporation -- one of the original think
tanks. They perform research on a variety of health
issues and have a well-indexed archive of publications
on their site, which features a powerful search
engine. |
Institute for Healthcare
Improvement
| |
The Institute for Healthcare
Improvement is an independent, nonprofit organization working to improve
health care systems in the United States, Canada, and Europe by fostering
collaboration among health care organizations. They hold regular conferences
worldwide, and offer a variety of resources
and teaching tools for health care professionals. |
Center
on Budget and Policy Priorities
| |
The
Center is one of the nation's premier policy organizations working
at the federal and state levels on fiscal policy and public programs
that affect low- and moderate-income families and individuals. |
Center
for Studying Health System Change (HSC)
| |
The
mission of the Center for Health System Change (HSC) is to inform
policy makers and private decision makers about how local and national
changes in the financing and delivery of health care affect people.
HSC strives to provide high-quality, timely, and objective research
and analysis that leads to sound policy decisions, with the ultimate
goal of improving the health of the American public. |
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this time
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